Caregiving resources on the web

Posted by ghgeorge
October 19, 2009

Caregivers have a daunting task of trying to keep the person they are taking care of as safe and healthy as possible while trying to do the same for themselves. Sadly most stop taking care of themselves because there are not enough hours in the day to do everything. Over time they begin to gain weight and stop eating well or going to the doctor for regular checkups. Over time they begin to get sick and that puts even more stress on their system as they try to do everything at once. Fortunately there are resource available that can help the caregiver to vent and hook up with with similar problems. We have found four such groups that help caregivers across the country. The site are:

All of these sites are busy and have places for chatting, getting help and puboishing stories about other caregivers and what they did to survive. We have found that it is worthwhile to sign up on all of these sites because you can make friends both remotely and locally that understand what you are going through because they are in your shoes, and they may know of places to get help or money depending on your status. There is nothing worse that feeling that you are all alone, no one knows what you are going through and you are just stuck at home trying to keep your loved one alive and happy. These sites help get npast that daunting task thyat you face every day.

We will post all of this on our "useful goodies" page so that readers will still have access to it after this story is archived on the site. SCRN was created to help those that are disabled, or are taking care of someone who is. To that end we track and collect resources from across the country that makes your life easier. If you have a resource that we do not have on our site we ask that you drop a line to the webmaster and let him know about it. There are lots of local places that do awesome work but few know about it. That is sad because helpers that have people that are not utilized or money that is not distributed appears to show that need is not there. From previous experience we know that that is never the case, there is a lot more suffering than help that is avaialble. Help others that do not know where to turn, or have tried other avenues that have all turned up a failure.

The opposite applies as well. If you need help and don’t know where to turn drop us as line. We help people all the time in situations where the hospital has dumped their loved one on their doorstep and they do not know where to turn. It is a scary situation when you get home and medications from the pharmacy have needles and you have no idea how to administer the medication because the nurses at the hospital never went over the meds. We can help answer a lot of questions or point you to the right organization that can help. We have been there when I first came home and there was no one to help because we were not instructed on where to get nursing help, or that we could even get nursing care. That is also why chat rooms are so helpful because you can read what happened to others and use the resources that helped them. That is the way the disabled community survives, by helping each other to get your job done and to take care of yourself.

General, Roaring Mouse (advocacy)

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