New Internet based study on CRPS looking for participants

Posted by ghgeorge
October 23, 2009

The Reflex Sympathetic Dystrophy Syndrome Association is looking for participants in a new study of CRPS. You must have a diagnosis of either Type I or Type II to enter into this study. Note that this is an Internet study and not the traditional one where you go to a doctor or study center and tests are performed on you. Instead questions will be sent to you either through email or web. If you do not feel comfortable with doing a study in this way you can contact the study’s Project Manager to obtain paper documentation and forms to be filled out. This is completely voluntary and you can quit at any time. Each year you will be sent a group of questions on your health, health care utilization, treatment and how CRPS affects your life. You do not have to submit any medical forms and do not need insurance to participate. Everything is sent using an encrypted transaction so that all of your answers are secure.

This study is to determine the long term health effects of CRPS. If you can put a little time to answer some questions should become part of the study. The more doctors and researchers know about CRPS and how it works the better treatments can be created to combat it. Most of us cannot do much to either make our lives better or help to make better treatment, but we can here. We recommend that you sign up and help everyone that has to deal with CRPS. The questions are yearly so it is not going to take a lot of time out of your schedule.

General, Medical

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