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	<title>Spinal Cord Resources Network &#187; disability</title>
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	<link>http://www.spinalcordresources.com</link>
	<description>The site for news and information for the disabled community</description>
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		<itunes:summary>Just another WordPress weblog</itunes:summary>
		<itunes:author>Spinal Cord Resources Network</itunes:author>
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		<title>New Technology helps a blind soldier see with his tongue.</title>
		<link>http://www.spinalcordresources.com/2010/06/new-technology-helps-a-blind-soldier-see-with-his-tongue/</link>
		<comments>http://www.spinalcordresources.com/2010/06/new-technology-helps-a-blind-soldier-see-with-his-tongue/#comments</comments>
		<pubDate>Thu, 10 Jun 2010 02:20:10 +0000</pubDate>
		<dc:creator>laura</dc:creator>
				<category><![CDATA[Medical]]></category>
		<category><![CDATA[Technology]]></category>
		<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[blind]]></category>
		<category><![CDATA[Brainport]]></category>
		<category><![CDATA[building access]]></category>
		<category><![CDATA[disability]]></category>
		<category><![CDATA[Medical Breakthrough]]></category>
		<category><![CDATA[research]]></category>

		<guid isPermaLink="false">http://www.spinalcordresources.com/?p=1139</guid>
		<description><![CDATA[Submitted by Dillon Moses
Imagine being at war in the midst of battle without being aware of what was going on around you. Imagine having the desire to serve your country and help your fellow soldiers but you needed an aid to walk. This has been a problem for British soldier Craig&#160; Lundberg for the past [...]]]></description>
			<content:encoded><![CDATA[<p style="text-align: justify;">Submitted by Dillon Moses</p>
<p style="text-align: justify;">Imagine being at war in the midst of battle without being aware of what was going on around you. Imagine having the desire to serve your country and help your fellow soldiers but you needed an aid to walk. This has been a problem for British soldier Craig&nbsp; Lundberg for the past three years.&nbsp; Craig Lundberg lost his vision after he was struck by a rocket propelled grenade in 2007. &nbsp;</p>
<p style="text-align: justify;">After his incident Corporal Craig Lundberg was the first to get his hands or should I say tongue on a new device called Brainport. You can say that he was a pioneer in using this device. Brainport allows him to see images from his goggles which are then translated with a simulation pattern to his tongue and converted into signals that can be understood by his brain. People who are visually impaired will learn to use this device by recognizing patterns, movement and also high contrast objects. What concerns me is what happens if this particular soldier gets the device damaged while on a mission? Does the device have some sort of backup software and is it durable enough to withstand the different environments and situations a soldier has to deal with in the time of war?</p>
<p style="text-align: justify;">According to Lundberg he says that the device feels like &ldquo;licking a nine volt battery&rdquo; or &ldquo;like popping candy&rdquo;. This device has a great potential to change the lives of many people if released to the public. This device could help those who are visually impaired see their loved ones which could be an enormous advancement in life of people affected by this disability. Lundberg says &ldquo; One of the things it has allowed me to do is pick up objects straight away, I can reach out and pick them up when before I would be fumbling around to feel for them&rdquo;. The value of this simple action is taken for granted by so many people. You can tell that life is a lot more easier for Lundberg and his family &#8230;.even more so than before. There has to be some feeling of relief within him that now he has the ability to do more things for himself as well as others.</p>
<p style="text-align: justify;">Currently this revolutionary device being used is only a prototype according to <a href="http://www.switched.com/2010/03/16/blind-british-soldier-regains-sight-with-his-tongue">Disability and Health News</a>. hopefully the British army will find answers to these problems before it is used by other visually impaired soldiers.The neuropsychologist supervising this trial Maurice Pitito says that &ldquo; It&rsquo;s a concept in which you replace a sense that was lost by another one.&rdquo; Brainport can allow people who are visually impaired walk around without a cane. It gives them the opportunity to navigate obstacles and even the opportunity to read signs. It also allows them to get a feeling of the world from their tongue and that gives them a sense of seeing. Most people do not understand that you do not only see with your eyes but you see with your brain.</p>
<p>&nbsp;</p>
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		<title>Accessible software disappearing</title>
		<link>http://www.spinalcordresources.com/2010/02/accessible-software-disappearing/</link>
		<comments>http://www.spinalcordresources.com/2010/02/accessible-software-disappearing/#comments</comments>
		<pubDate>Wed, 24 Feb 2010 00:11:31 +0000</pubDate>
		<dc:creator>ghgeorge</dc:creator>
				<category><![CDATA[General]]></category>
		<category><![CDATA[Roaring Mouse (advocacy)]]></category>
		<category><![CDATA[Technology]]></category>
		<category><![CDATA[disability]]></category>
		<category><![CDATA[free software]]></category>
		<category><![CDATA[open source software]]></category>
		<category><![CDATA[volunteer]]></category>

		<guid isPermaLink="false">http://www.spinalcordresources.com/?p=1116</guid>
		<description><![CDATA[While some commercial software packages have interfaces to work with screen readers and magnifiers, open source, or free applications cannot hook up to these helper applications. Because of licensing pricing and the inability of free software to pay for licensing for a large number of users throughout the world, open standards in file formats appears [...]]]></description>
			<content:encoded><![CDATA[<p><img width="80" height="96" align="left" alt="" src="http://www.spinalcordresources.com/wp-content/uploads/image/SoapBoxMouse-small.png" />While some commercial software packages have interfaces to work with screen readers and magnifiers, open source, or free applications cannot hook up to these helper applications. Because of licensing pricing and the inability of free software to pay for licensing for a large number of users throughout the world, open standards in file formats appears to be creating a perfect storm of problems. In order to keep companies like Microsoft from controlling file formats and applications that can create those formats Internet engineering groups have created the OpenDocument format. This format is completely free and has no licensing or royalty fees associated with it. Programs that use this format can read and write the files making it a Rosetta stone for programs across the enterprise. <span id="more-1116"></span> It also allows individuals to create and work with files generated by Microsoft Office without using that office suite. Free programs like Open Office gives anyone most of the capabilities of Microsoft Office without paying the large fees to get it. But Microsoft uses a proprietary format that only they control forcing people to purchase their software to interconnect. If programs use OpenDocument, then anyone can use any application they choose, dramatically dropping the cost of licensing. However, these free programs are causing problems for the disabled community because they do not connect to any of the helper apps that allow them to read and modify documents. Some disability groups are preparing to sue governments that use formats that are incompatible with helper applications for the disabled. (Source: <a href="http://www.computerworld.com/s/article/346341/Career_Watch">ComputerWorld</a>)</p>
<p style="margin-bottom: 0in">Forcing everyone to use Microsoft Office because they have good disability readers allows that monopoly to charge large sums of money for word processors and spreadsheets. With programs like Open Office and Oracle&#8217;s Star Office there is no reason to pay these large sums of money or to force everyone to buy a product merely because they make it easier to manipulate data. This is a good reason for the disabled to join a open source project and help them to be more disability friendly. Open source, or free programs only work when everyone donates some time and effort to make the program better. In this case the developers of the open source programs do not know what needs to be done to help those with poor eyesight or those that have problems manipulating things in their hands. Many of us have plenty of time on our hands and have access to a computer. That is everything you need to join an open source application and make it more disability friendly.</p>
<p style="margin-bottom: 0in">SourceForge is an excellent website to start looking. Programs that are the most popular are posted that you can look at. These programs have people that you can send emails to or there are chat rooms that you can post your willingness to help. Almost everyone is looking for help and you will be integrated into the development of a program that is used worldwide. This is a win-win situation where you get a chance to go back to work on your schedule without bosses beating you on the head because you are disabled. Rather than sitting in front of the television all day and night you can do things that are fun and worthwhile and meet up to make new friends. This has been a very powerful way of generating programs that everyone needs and there is no reason why the disabled cannot make their mark on how all these programs work.</p>
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		<title>Cyber-Shockwave underscored disabled issues during emergency</title>
		<link>http://www.spinalcordresources.com/2010/02/cyber-shockwave-underscored-disabled-issues-during-emergency/</link>
		<comments>http://www.spinalcordresources.com/2010/02/cyber-shockwave-underscored-disabled-issues-during-emergency/#comments</comments>
		<pubDate>Wed, 24 Feb 2010 00:04:14 +0000</pubDate>
		<dc:creator>ghgeorge</dc:creator>
				<category><![CDATA[Emergency Preparedness]]></category>
		<category><![CDATA[Equipment]]></category>
		<category><![CDATA[General]]></category>
		<category><![CDATA[Roaring Mouse (advocacy)]]></category>
		<category><![CDATA[computer]]></category>
		<category><![CDATA[cyber attack]]></category>
		<category><![CDATA[disability]]></category>
		<category><![CDATA[infrastructure]]></category>
		<category><![CDATA[war game]]></category>

		<guid isPermaLink="false">http://www.spinalcordresources.com/?p=1111</guid>
		<description><![CDATA[A war game was played out about a week ago where the United States was attacked through the Internet and the electrical grid crashed causing immeasureable problems across the country. The game was re-broadcast by CNN and it was a chilling realization that not only were the able bodied in big trouble, but the disabled [...]]]></description>
			<content:encoded><![CDATA[<p><img width="64" height="93" align="left" alt="" src="http://www.spinalcordresources.com/wp-content/uploads/image/Flag.jpg" />A war game was played out about a week ago where the United States was attacked through the Internet and the electrical grid crashed causing immeasureable problems across the country. The game was re-broadcast by CNN and it was a chilling realization that not only were the able bodied in big trouble, but the disabled community was going to see serious casualties as nurses were unable to get to patients in homes, medication that required refrigeration went bad and hospitals were beyond overload with car accidents and crime waves that hit neighborhoods because the police could not respond. The actual war game did not take into account the disabled community or how they were going to be helped, but one could easily see that without electricity people in condominiums are stuck there with wheelchairs that slowly stopped without a way to recharge them. Even if you could get out stores were closed and you could not get to grocery stores, gas stations, or anywhere else that people go to for basic needs. <span id="more-1111"></span> Even with the national guard called in to restore order, those on ventilators were going to find themselves in deep trouble as their batteries ran out and there was no way of calling an ambulance and get them to the building before they died. This looked like Hurricane Katrina, except happening all over the country at once and the local and federal government was not set up to handle such a major loss of infrastructure. What this showed is why it is so important that individuals set up their own emergency plan which includes water, food, flashlights, radios, &nbsp;battery run televisions and telephones that either do not require power or get a UPS that can keep your cell phone charged for a month. Hopefully it woke up a few of those people but it was something that the whole country should have been watching. We are all just a few steps away from not being able to feed ourselves or family because of no preparations and hoping that our government will come in and save us with door to door food and water for free. (Source: <a href="http://www.washingtonpost.com/wp-dyn/content/article/2010/02/16/AR2010021605762.html">Washington Post &#8211; Cyber Crisis</a>)</p>
<p>It is not surprising that we are ill prepared to handle a serious attack from the Internet. In the scenario Wall Street was closed down for a week while the power was turned back on. It would be impossible to calculate the tremendous damage to our economy that would happen if no one could trade on the stock exchange for a week. There would be runs on companies, mutual funds, and probably banks. How many companies would be wiped out when things first started up again? How many workers would find themselves unemployed and their bank accounts emptied because of bank failures. People would have to figure out how to stay alive for months while the feds figured how to pay for all the accounts in banks that were insured. If you do get a check, where do you cash it? What other bank do you truest to open up a new account? Does the postal system even work? There are substantial documents that are super secret that outline COG, or continance of government.&nbsp;These papers outline what to do in the case of a nuclear attack where the federal government is substantially damaged. There are outlines for who is responsible for what and how to ring the economy back on line. Many aspects of that document would have to be implemented if we were to get our country back off the ground again.</p>
<p style="margin-bottom: 0in">How would the disabled fare in this environment? If you are in a hospital situation then you are probably the safest of anyone. Major hospitals would be the first to get power and supplies. But if you are either at home or at a shelter then things are going to get ugly quickly. Everyone saw what  happened in Hurricane Katrina at the Superdome where basic supplies were gone and people were living without clean water or sanitary conditions. The government has shown that it is not prepared to deal with a large emergency and that it takes time for groups like the military to get involved and get assets to the area. During that time everyone, especially the disabled must be able to fend for themselves for the better part of a week. Hoping that someone from state or federal government is going to come knocking on your door with food, water and medical supplies is a pipe dream. Those folks that need a nurse to get going in the morning need to make arrangements to have someone stay with them during the storm so that when roads are blocked, power is out and there is no gasoline your nurse is already in the house and can help you immediately. If you require drugs that have to be refrigerated then get a small refrigerator and a few uninterruptible power supplies or a generator to keep the fridge running. Make a spot in your home that can hold food, water and other supplies for a week for each person in your household, including your helpers. That will give you enough time for emergency crews to get power back up and police and fire crews to get things back under control.</p>
<p style="margin-bottom: 0in">How well you fare in an emergency is directly tied to how well you prepared. Those that have generators or UPS systems will find that life without power is more of an inconvenience. Food and water are the most important things you can have and things can get ugly if you run out of either. It is easy to stock up before an emergency and to keep track of dates so things do not go bad. Make sure that you also include manual can openers to open cans of soup. Since electricity may be an issue you should also include a couple of battery powered flashlights and a radio. If you have the budget for it get a battery powered digital television so that you can pick up local stations. This is a good place to start to set up an emergency kit to help you in times of bad weather or national emergency. Either way you should be able to stay at home for 7 to 10 days without food or water to make sure you don&#8217;t run out of supplies before emergency crews get a handle on the situation.</p>
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		<title>Disabled community loses out on helping free software</title>
		<link>http://www.spinalcordresources.com/2010/02/disabled-community-loses-out-on-helping-free-software/</link>
		<comments>http://www.spinalcordresources.com/2010/02/disabled-community-loses-out-on-helping-free-software/#comments</comments>
		<pubDate>Mon, 22 Feb 2010 16:16:36 +0000</pubDate>
		<dc:creator>ghgeorge</dc:creator>
				<category><![CDATA[General]]></category>
		<category><![CDATA[Roaring Mouse (advocacy)]]></category>
		<category><![CDATA[Technology]]></category>
		<category><![CDATA[computer]]></category>
		<category><![CDATA[disability]]></category>
		<category><![CDATA[Free]]></category>
		<category><![CDATA[Outreach]]></category>
		<category><![CDATA[Software]]></category>

		<guid isPermaLink="false">http://www.spinalcordresources.com/?p=1107</guid>
		<description><![CDATA[Communication is sorely lacking in the disabled community not only to each other, but to virtually anyone in the able bodied community. This ends up creating products and services that are virtually impossible for the disabled to use. The sad thing is that with only a few changes virtually all products can be made so [...]]]></description>
			<content:encoded><![CDATA[<p><img width="64" height="93" align="left" alt="" src="http://www.spinalcordresources.com/wp-content/uploads/image/Flag.jpg" />Communication is sorely lacking in the disabled community not only to each other, but to virtually anyone in the able bodied community. This ends up creating products and services that are virtually impossible for the disabled to use. The sad thing is that with only a few changes virtually all products can be made so that the disabled could more easily use them. But the disabled community does a very poor job of communicating with companies, entering into groups that test products, or write letters or call companies to make things better. This is especially bad with the free and open source communities that write a multitude of software packages for free. <span id="more-1107"></span> These go from operating systems like Linux to programs like Firefox and Gimp. These programs and operating systems allow people to do amazing things on their computers with no money or licensing fees. The disabled community is probably the most in need of this software because these people are living on little more than Social Security Disability payments and typically don&#8217;t have a lot of disposable income for games or productivity software like Microsoft Office. An awesome program, Open Office, gives you the virtually the same capabilities as Microsoft Office without any of the cost and runs on computers that are older. But the disabled community does not work with groups that write these programs so most do not have functions to make it easier for the blind or those with hand control problems to use the program.</p>
<p style="margin-bottom: 0in">This is a monumental problem that the disabled community needs to address. The different communities do not talk to each other, and in some cases work against each other to get the same things accomplished. We can no longer think that only one disability exists and as such we can ignore everyone else and not even try to help them. To help ourselves it is easy to hook up with a open source program and help them. All of these programs are looking for help and guidance and would love to have disabled people on their team to make things better and easier to use. But we have to do the work, it doesn&#8217;t happen by itself. Sitting in front of the television is not a good way to run your life and getting back to work and helping others at the same time is an excellent thing to do.</p>
<p style="margin-bottom: 0in">I have watched many wheelchair bound people just sit and do nothing in front of a television 18 hours a day. There is no reason that they cannot write a blog, letters, or make phone calls to their elected officials or others to make things better for the whole community. I guess that it depends on your own personal drive but there has to be something else in life than what toi watch on the travel channel. By volunteering for something as simple as a free and open source software package you are using your brain again and interacting with people all over the world. They appreciate the work you are doing and you get to help other disabled people that need access to these programs but they cannot until functionality and documentation exists to use them. Don&#8217;t let yourself drop down to nothing as you just watch television. You have skills that are in need and you should figure out the best way to use them. Open Source products are just one place that  you can help a lot of people by doing what you know best.</p>
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		<title>Disabled demanding games they can  play too</title>
		<link>http://www.spinalcordresources.com/2010/02/disabled-demanding-games-they-can-play-too/</link>
		<comments>http://www.spinalcordresources.com/2010/02/disabled-demanding-games-they-can-play-too/#comments</comments>
		<pubDate>Mon, 22 Feb 2010 15:39:50 +0000</pubDate>
		<dc:creator>ghgeorge</dc:creator>
				<category><![CDATA[General]]></category>
		<category><![CDATA[Law Center]]></category>
		<category><![CDATA[Roaring Mouse (advocacy)]]></category>
		<category><![CDATA[Technology]]></category>
		<category><![CDATA[ADA]]></category>
		<category><![CDATA[computer]]></category>
		<category><![CDATA[disabilities]]></category>
		<category><![CDATA[disability]]></category>
		<category><![CDATA[games]]></category>
		<category><![CDATA[lawsuit]]></category>

		<guid isPermaLink="false">http://www.spinalcordresources.com/?p=1104</guid>
		<description><![CDATA[Disabled gamers have had virtually no place to go to that writes up how well the games work for those with disabilities. In fact, some gamers have taken things into their own hands and are starting to sue large game companies that ignore the Americans with Disabilities Act. According to the law all companies are [...]]]></description>
			<content:encoded><![CDATA[<p><img width="75" height="70" align="left" alt="" src="http://www.spinalcordresources.com/wp-content/uploads/image/ComputerMouse.png" />Disabled gamers have had virtually no place to go to that writes up how well the games work for those with disabilities. In fact, some gamers have taken things into their own hands and are <a href="http://www.gamespot.com/news/6239339.html">starting to sue</a> large game companies that ignore the Americans with Disabilities Act. According to the law all companies are required to make their products useful to the disabled so that everyone can have access to them. <span id="more-1104"></span> Sony is the fist of these lawsuits where the disabled are trying for force game companies to work with the disabled community that deserves good games too. In the meantime, AbleGamers have <a href="http://www.ablegamers.com/reviews/">created a website</a> so that the disabled community can look up which games are easy to play if you are a paraplegic or quadriplegic. They also have search criteria if the game supports closed captioning, speed and difficulty settings as well as color changes to help those that are color blind.</p>
<p style="margin-bottom: 0in">While it is great that a group has taken up the job of trying to help the disabled community to make good decisions on which games play well and which ones that are missing basic help for them, all game companies should think of the ADA during design phase. Typically it is not difficult to add difficulty levels or to add closed captioning since the characters are speaking the words anyways. Changes to keep colorblind players happy is also a relatively simple process because there are well known color combinations that cause grief and those could be easily changed in the graphics engine without any other modifications to how the game plays or how it looks.</p>
<p style="margin-bottom: 0in">One would think that game companies would want to add to the number of customers that can purchase and play their games if the work to do that is easy and cheap. But instead the game companies completely ignore the disabled community because there is no one to club them over the head to let them know that we exist. The lawsuit against Sony will wake that company up, but what about the others? The idea is to get them to make minor changes without pricing the company into bankruptcy because of legal costs or dramatically increased development costs. This could be fixed by adding a few disabled people to the testing teams so that fixes can be worked on right away and the company can get write-ups in disability magazines and websites saying they are working with the community to make their products available. This would open up a brand new market for arcade games to people that would love to play and pay for them but can&#8217;t because they are unplayable. But with a few changes we all can have fun on our computers and game consoles.</p>
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		<title>New transport law in North Ireland</title>
		<link>http://www.spinalcordresources.com/2010/01/new-transport-law-in-north-ireland/</link>
		<comments>http://www.spinalcordresources.com/2010/01/new-transport-law-in-north-ireland/#comments</comments>
		<pubDate>Mon, 25 Jan 2010 18:50:16 +0000</pubDate>
		<dc:creator>laura</dc:creator>
				<category><![CDATA[General]]></category>
		<category><![CDATA[Law Center]]></category>
		<category><![CDATA[Outside America]]></category>
		<category><![CDATA[bigotry]]></category>
		<category><![CDATA[disability]]></category>
		<category><![CDATA[fair housing]]></category>
		<category><![CDATA[legislation]]></category>
		<category><![CDATA[police]]></category>
		<category><![CDATA[transportation]]></category>

		<guid isPermaLink="false">http://www.spinalcordresources.com/?p=1100</guid>
		<description><![CDATA[For years the disabled have been complaining that taxis and bus drivers have refused service, charged extra to take them on board, or have just roared past them because they didn&#8217;t want to deal with a wheelchair on the bus. Finally a new law, the &#34;Disability Transport Regulations&#34; now require that taxis, buses and trains [...]]]></description>
			<content:encoded><![CDATA[<p><img width="64" height="85" align="left" alt="" src="http://www.spinalcordresources.com/wp-content/uploads/image/Scale.jpg" />For years the disabled have been complaining that taxis and bus drivers have refused service, charged extra to take them on board, or have just roared past them because they didn&#8217;t want to deal with a wheelchair on the bus. Finally a new law, the &quot;Disability Transport Regulations&quot; now require that taxis, buses and trains treat the disabled as any other able bodied passenger, including charging the same price and taking the as passengers. There have been many complaints over the years that mass transit workers refuse to help the disabled and many times drive past taxi and bus stops that people in wheelchairs are sitting in. <span id="more-1100"></span> Many people complained about empty buses blasting by eh bus stop without even slowing down because the driver did not want to deal with getting someone in a wheelchair onto the bus and locked down so they were safe during the ride. Many taxi drivers charged extra fees to load someone that was disabled into their vehicle and for luggage that they were required to put into the trunk because the rider could not carry them into the car themselves. This discrimination has made it very difficult for the disabled to get around the cities and to get to work or shopping centers. Trains were also on the list of transit workers that either refused to help the disabled by saying the lifts did not work or simply ignored people in wheelchairs. Those same companies are now required to have lifts and other equipment to safely transport the disabled. The &quot;Equality Commission&quot; has been playing a series of advertisements on tv and radio to let the disabled community know that they have new rights and transport workers know their new job requirements. It is hoped that these advertisements will get taxi drivers and bus drivers to realize that they must stop for disabled citizens and they cannot charge more money or refuse service simply because of the disability.</p>
<p>SCRN has written many articles about issues in Europe as the disabled were removed from airplanes because the pilot didn&#8217;t want them on board to taxi drivers refusing to take people in wheelchairs because it took to long to get them into the car. It is good that governments realize that the disabled should be treated no differently than the able bodied and should not get substandard service or be charged extra because of their injury or medical condition. It will be interesting to see how the advertisement blitz works and whether workers will actually take it to heart that they need to help those that cannot help themselves. It is not clear who will be doing the enforcement of the law, but they better have plenty of officers around to make sure things are working properly. People are creatures of habit and will not do more work or do things that they do not want to unless they are forced to. Secret officers should try to get on mass transit to make sure it is working properly and if not there needs to be stiff fines to be paid. Once a few workers get hit with big fines it will go through the grape vine that they have to follow the law or else.&nbsp;</p>
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		<title>The ever increasing doughnut hole</title>
		<link>http://www.spinalcordresources.com/2009/12/the-ever-increasing-doughnut-hole/</link>
		<comments>http://www.spinalcordresources.com/2009/12/the-ever-increasing-doughnut-hole/#comments</comments>
		<pubDate>Tue, 29 Dec 2009 17:34:59 +0000</pubDate>
		<dc:creator>ghgeorge</dc:creator>
				<category><![CDATA[General]]></category>
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		<guid isPermaLink="false">http://www.spinalcordresources.com/?p=1075</guid>
		<description><![CDATA[
The doughnut hole, or the payment that Medicare patients make when their medications cost more than&#160; $2700 a year is going to get bigger. The new bill in Congress is supposed to close the payments over the next 10 years so that all pharmacy payments will be covered by Medicare. However, because of increases in [...]]]></description>
			<content:encoded><![CDATA[<p>
<input align="left" width="64" type="image" height="93" src="http://www.spinalcordresources.com/wp-content/uploads/image/Flag.jpg" />The doughnut hole, or the payment that Medicare patients make when their medications cost more than&nbsp; $2700 a year is going to get bigger. The new bill in Congress is supposed to close the payments over the next 10 years so that all pharmacy payments will be covered by Medicare. However, because of increases in pills and decreases in money coming in to pay for federal programs those on Medicare can expect to pay more for the next three years. After that the new legislation, if it becomes law will eventually catch up with those increases and will start to close the doughnut hole. <span id="more-1075"></span> That does nothing to help the people that take expensive drugs and have to come up with $2700 every year or just stop taking their pills. Many people that are on blood pressure medication or pain pills just stop taking their medication and for the rest of the year hope that their health does not decrease enough to be hospitalized until the beginning of the next year when Medicare picks up again. For those that can come up with the $2700, at $4300 Catastrophic Care kicks in and pays for 95% of all medications regardless of the amount. So those what are trying to live off of Social Security Disability payments have to somehow come up with over $2000 a year and give up on either a car or a place to live. This hole was put in place by the Republicans who said that the government could not pay for all drugs and this was a way to make sure that everyone would have access to the Medicare pharmacy program. However, it only creates a situation where people that need drugs cannot afford to keep taking them and are forced to stop taking them and put their health at risk. In the mean time the new Medicare bill requires pill manufacturers to give everyone a 50% discount to help individuals pay for their pills. No one knows how much that discount will help those that cannot afford their pills now, but the already existing programs to help those to pay for drugs only help a tiny fraction because the companies decide who their are going to help and by how much. (Source: <a href="http://www.washingtonpost.com/wp-dyn/content/article/2009/12/27/AR2009122701206.html?referrer=emailarticle">Washington Post</a>)</p>
<p>This political football has created a group of people that cannot pay for their drugs because of a crazy program that is based on Social Security that was never supposed to give people enough money to pay for their medical bills. So instead we have a drug industry that makes billions of dollars in profits on the backs of those that pay for research on the pills that we are charged $1000+ a month for. These companies due to keep generic drug makers from creating drugs that can be afforded by all. It is interesting that the costs of the same drug in the US is a fraction of that amount in Canada or even India. Each country pays a different amount but we are too stupid to make these same deals with the drug makers. To add insult to injury Medicare is not allowed by law to purchase drugs from other countries for less than what we are charged for them now. The US pays for all of the research but does not gain any of the benefits of that research. Instead the poor of the country are forced to pay outrageous amounts of money for drugs that they need to stay alive. We need to make some decisions as a country on how we deal with those that are disabled and elderly. Either we are going to pay for their medical care or not &#8211; not the bits and pieces we are now. By only allowing these people to take their drugs every 6 months, their health is deteriorating to the point that they are dying before they should because of the damage caused by not taking their medications. Lets close the doughnut hole and give people the medical care that they need to live useful lives.</p>
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		<title>UK: Disabled see worst layoffs in decades</title>
		<link>http://www.spinalcordresources.com/2009/12/uk-disabled-see-worst-layoffs-in-decades/</link>
		<comments>http://www.spinalcordresources.com/2009/12/uk-disabled-see-worst-layoffs-in-decades/#comments</comments>
		<pubDate>Tue, 29 Dec 2009 16:40:42 +0000</pubDate>
		<dc:creator>ghgeorge</dc:creator>
				<category><![CDATA[General]]></category>
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		<guid isPermaLink="false">http://www.spinalcordresources.com/?p=1070</guid>
		<description><![CDATA[Five percent of the disabled people that had a job have been laid off in the last 12 months as the ever enveloping recession hits all areas of employment. The job losses put the disabled people at risk in losing their cars and homes forcing them on the street or in nursing homes because there [...]]]></description>
			<content:encoded><![CDATA[<p><img align="left" width="64" height="85" alt="" src="http://www.spinalcordresources.com/wp-content/uploads/image/Scale.jpg" />Five percent of the disabled people that had a job have been laid off in the last 12 months as the ever enveloping recession hits all areas of employment. The job losses put the disabled people at risk in losing their cars and homes forcing them on the street or in nursing homes because there is no place for them. The disabled that are looking for a new job are finding out that the rolls of unemployed able bodied workers is also at the highest in years. So while they are competing with an ever increasing unemployed group the disabled are running into discrimination from employers that do not want to hire the disabled. <span id="more-1070"></span> There is a feeling that that the disabled will not work as hard as the able bodied and that they will have to modify the work area to help the disabled worker to do their job. Since no company wants to pay anything more than necessary for each worker it makes sense to get rid of the disabled workers as soon as possible and replace them with able bodied workers. According to reports fifty two percent of the disabled have experienced discrimination in the workplace. Because there are no laws that specifically protect the disabled from being replaced by the able bodied, it is expected that a larger percentage of the unemployed will continue to be the disabled until the economy improves or new laws are enacted to protect the disabled. For those that have a job, most find that the only jobs available are temporary jobs that have no benefits and are the first to be fired if the company cannot keep sales coming in. To make&nbsp; matters worse most disabled have little or no savings because of medical bills and other payments that the able bodied typically do not have to pay. This means that those that lose their jobs do not have anything to fall back on to pay the mortgage or car payment and run the risk that they will lose their only transportation to work or the doctor. (Source: The <a href="http://www.independent.co.uk/news/uk/home-news/disabled-workers-worst-hit-by-cuts-in-recession-1851588.html">Independent</a>)</p>
<p>Unfortunately the disabled are usually the ones that are the first to be laid off and that employers take advantage 9of those workers because they know how important the salary is. There are laws in place to protect the disabled so they will not be discriminated against but there are few agencies that are able to enforce the law. Even if the disabled person can prove that they have been discriminated against they need the money to hire a lawyer to go after the employer. If they do go after the company then they can be fired for other reasons. So most times the disabled just deal with the discrimination and hope that they can hang on to the job until the economy gets better and they can get another job.The government is working on a new law to protect the disabled workers called the &quot;Equality Bill&quot; and Parliament is discussing it. People that have been discriminated against are asked to contact their MP and let them know what happened and what could be done to fix the situation. Until this bill is passed into law the disabled will not have the same protections as the able bodied and will have to put up with unsavory managers that take advantage of their situation.</p>
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		<title>Older population means increasing disability population</title>
		<link>http://www.spinalcordresources.com/2009/12/older-population-means-increasing-disability-population/</link>
		<comments>http://www.spinalcordresources.com/2009/12/older-population-means-increasing-disability-population/#comments</comments>
		<pubDate>Tue, 29 Dec 2009 15:58:47 +0000</pubDate>
		<dc:creator>ghgeorge</dc:creator>
				<category><![CDATA[General]]></category>
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		<category><![CDATA[disability]]></category>
		<category><![CDATA[elderly]]></category>
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		<guid isPermaLink="false">http://www.spinalcordresources.com/?p=1067</guid>
		<description><![CDATA[After many warnings about the rapidly aging baby boomer generation were ignored, insurance companies are stating to deal with increasing disabled populations. Canada is especially seeing these changes because of their medical care system that covers everyone in the population regardless of their age or medical condition. Tests and procedures for the disabled are much [...]]]></description>
			<content:encoded><![CDATA[<p><img align="left" width="64" height="85" alt="" src="http://www.spinalcordresources.com/wp-content/uploads/image/Scale.jpg" />After many warnings about the rapidly aging baby boomer generation were ignored, insurance companies are stating to deal with increasing disabled populations. Canada is especially seeing these changes because of their medical care system that covers everyone in the population regardless of their age or medical condition. Tests and procedures for the disabled are much more expensive than those for younger populations that typically do not see the doctor except for flu conditions. To offset these additional costs governmental agencies are trying to get the disabled back to work but are running into issues with employers. <span id="more-1067"></span> Many employers do not want to hire someone that is disabled, figuring that the disabled are mentally unable to do any work. Even if the disabled are hired they are typically paid a fraction of an able bodied worker performing the same job. This makes it virtually impossible for the disabled to pay for their own medical care and also feed and clothe their families. Programs were put into place to help the disabled to pay for food and other items but because of the recession, all these programs are running in deficit with some being fazed out because of increased numbers of disabled and no money to help them. Substantial work needs to be done to help the disabled and to help the large number of elderly that are requiring the same programs that the disabled are presently using. There is not enough money for all and Congress has to make more money available or the disabled will be forced to live without medical care or access to a pharmacy. (Source: <a href="http://topnews.us/content/29366-disabilities-rise-aging-population">Topnews</a>)</p>
<p>The medical care bill changes are the least of our problems with an ever increasing disabled population. All these programs are running out of money or are rationing what little money is left. Vocational Rehab which has been helping the disabled get back to work are finding that they can only help those that are presently in the program. Any new people are being put into a queue that may or may not be funded this year or next. So we will have large groups of people that want to get back to work but cannot even talk to a counselor because there is&nbsp; no money to convert cars or put ramps in a home. Decisions have to be made on what will be done to help the disabled and how will funding be increased over time as workers who have been paying taxes over the last 40 years move over to Social Security and disability payments. Somehow we need to get more workers paying into these programs or we will be in deficit. The government has been in deficit for many years and managed to start to pay things off in the 1990s but economic problems have put all these programs in serious trouble.</p>
<p>Many analysts have said that Social Security and Medicare will run out of money by 2030, forcing people into nursing homes or halfway houses to pay the bills. Many of those people will be disabled by that time and will need specialized care if they are remove from their homes. No one knows where the money for those doctors and nurses that can work with the disabled but they must come from somewhere. It is doubtful that the population of the United States will put up with pushing the elderly and disabled on the streets panhandling for money because the governmental programs that were put in place to help them are now of money for good. No one wants to increase taxes but something has to be done or there will be substantial changes that will make the middle class disappear with a divide of services between the super rich and the ever increasing poor population.</p>
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		<title>Royal Bank of Scotland loses disability case</title>
		<link>http://www.spinalcordresources.com/2009/11/royalk-bank-of-scotland-loses-disability-case/</link>
		<comments>http://www.spinalcordresources.com/2009/11/royalk-bank-of-scotland-loses-disability-case/#comments</comments>
		<pubDate>Mon, 23 Nov 2009 21:52:10 +0000</pubDate>
		<dc:creator>ghgeorge</dc:creator>
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		<guid isPermaLink="false">http://www.spinalcordresources.com/?p=1001</guid>
		<description><![CDATA[In a landmark case that will change the way the disabled are treated in England, an 18 year old man tried to get the bank to modify their entryway so that he could use the bank from his wheelchair. After refusing to fix the problem, David Allen was forced to sue the bank in that [...]]]></description>
			<content:encoded><![CDATA[<p><img width="64" height="85" align="left" alt="" src="http://www.spinalcordresources.com/wp-content/uploads/image/Scale.jpg" />In a landmark case that will change the way the disabled are treated in England, an 18 year old man tried to get the bank to modify their entryway so that he could use the bank from his wheelchair. After refusing to fix the problem, David Allen was forced to sue the bank in that the bank violated his rights under the Disability Discrimination Act which states that companies must make reasonable adjustments so that the disabled have the same access as those that are able bodied. The bank fought the case and lost not only this case, but a case that awarded Mr. Allen money and the refusal of moving the case to the Supreme Court. <span id="more-1001"></span> The company said that they had sent a letter saying that the were sorry for the inconvenience but he could do Internet banking from home so they didn&#8217;t need to do anything. Mr. Allen did not open an Internet account because&nbsp; he wanted face to face interaction with the bankers and did not want to be a prisoner in his home because the bank would not allow him in to do his banking. Three judges agreed and awarded Mr. Allen money for the violation of his civil rights, the bank has to pay for a ramp fore wheelchairs, and they have to pay for all legal costs. The bank still thinks that the letter they sent explaining how sorry they were was enough and the whole thing was over blown. However, this is a landmark case that will be used by others who have had their civil rights violated by companies that refuse to make their businesses open to the disabled. (Source: <a href="http://business.timesonline.co.uk/tol/business/law/article6925544.ece">Times Online</a>)</p>
<p>It is good to see that bills passed by the government to help the disabled are working as the Americans for Disabilities Act is working in the US. For years the disabled have been forced to live with the fact that the cannot shop or go to restaurants merely because they are in a wheelchair and the company does not want to put in a ramp or elevator. With this act, companies will need to take notice when a disabled person asks for help. It is obvious from the callous remarks by the bank that a mere letter is supposed to make a disabled person feel better that they should really be stuck at home on the Internet instead out with the rest of those that live in society. We are proud that Mr. Allen was courageous enough to take on a large entity as the Royal Bank of Scotland which was money, lawyers, and resources to try and bully these types of lawsuits. Everyone deserves to be out in public and to do everything that an able bodied person could normally do. We can&#8217;t stop shopping for food, banking, going to school, work or any of a wide variety of things that all people should have access to.</p>
<p>This case underlines the importance of these acts and laws that protect the disabled from those that&nbsp; hate them and are callous to what it takes to get around in a wheelchair. It is very difficult to get around in a city with a wheelchair only to find that the bank won&#8217;t let you in to do your business with them. Large companies in the US must have disability coordinators to work with the disabled so that companies don&#8217;t get into situations like this poor gentleman ran into. Lets hope that the disability act in England will be adjusted in the same way so that we don&#8217;t have managers and lawyers making stupid decisions merely because they want a interview room or feel that there are not enough disabled customers to make it worthwhile to them. Disabled people put up with enough just in life&#8217;s issues with being stuck in a wheelchair and the pain and suffering associated with medical issues without having to deal with idiots that take our money to stay in business. It takes a lot of gall to tell us that you really don&#8217;t want us around, but boy keep on sending your money to us.</p>
<p>The notoriety of this case will also let businesses know that if they do not follow the law they will be taken to task and made to do the right thing. The bank as fully willing to go to the Supreme Court so they wouldn&#8217;t have to put in a wheelchair ramp. Fortunately the three judges saw through their scam and stopped the case from moving farther up the court chain. This is a good day for those that work hard to help the disabled.</p>
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